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A diagnosis of HLH can be terrifying for a family. To be told that your infant must immediately start chemotherapy or will die is a hard concept to wrap your mind around...only to be later informed that she will also require a bone marrow transplant. Phoenix has been blessed in many ways through this journey. Blessed to be diagnosed quickly. Blessed to be at The Children's Hospital of Philadelphia. Blessed that mommy is able to be with her around the clock and that Daddy and Mariah are able to visit daily. Blessed that she has a 10/10 donor match and BLESSED to be loved by so many people. It's one of those moments that forever change the course of life. This journey is about more than just Phoenix. It's also about the friends and family that are close to her and the family. God is touching and transforming the lives of many through this and we admire Phoenix for being a vessel to be used by the Lord. In these moments you cling to your faith with confidence that God will supply all your needs and will not put more on you than you can bare. We are so blessed and while life will never be "normal" again it's looking positive. I'm constantly reminder of the poster Mariah made and hung on Phoenix's crib during her critical days in the NICU. It read: "The future is bright and full of possibilities!" So true Mariah and I love you dearly for speaking and believing that for your little sister!
July 17, 2016 marks Phoenix's 2 year transplant anniversary. We are fortunate to also be able to meet and personally thank the amazing young woman, Melisa Diaz, who without hesitation donated her bone marrow to save Phoenix's life.
Xoxoxo
#PhoenixRisingHLH #hlhwarrior #hlh #teambigcheeks
