Step 1. Registration
You can use the example below on your team fundraising page to announce this is a virtual walk and that they would not be required to travel to NY to participate. (But we welcome anyone who wants to attend, just have them register as a NY walker participant)
Hi. Thank you for visiting my fundraising page! I will be hosting a Virtual Walk in _____ on Sunday, July 21st at ______. This is the same day hundreds will gather in New York City to raise awareness for Histiocytosis. Then on Monday, July 22nd look for _______'s photo that will be held outside the Today Show LIVE!
Briefly discuss your experience with histiocytosis.
I'm asking that you help me make a difference and join as a virtual walker and walk with me at LOCAL LOCATION or in your home town.
Together we can make a difference and aid in the fight against Histiocytosis!
Step 2. Pick a Location
Choose a local park or track where you can host your walk. Be sure to get permission if you expect a crowd to attend! Sometimes local governments may require police or medical staff to be on hand for larger crowds. Your local municipal building or county office should be able to direct you to the right personnel to assist you.
Step 3. Ask Other Locals to Join You
Ask others to join you! Friends, family, co-workers and your community! Tell them to choose 'Virtual Participant' when they sign up. Team TShirts will be mailed to Virtual Walkers.
Step 4. Call the Press
Calling is up to you, but the goal is to reach out to your local media and tell them about your local walk that will be held the same day as the 5K to Fight Histio in NYC and how the next day everyone will be live outside the Today Show holding you or your loved ones poster!
A press release is an easy way to reach out to your local newspaper! We will provide you with a template of all our information and how a press release must be formatted. All you'll have to do is add a small paragraph or two about your event and how histio affects you and the importance of private donations.
Chloe was born on the 24th November 2014 via elective cesarean. When Chloe was handed to me for cuddles, I was told she had a weird pimple on her body that was "nothing to worry about" but the midwife would get the pediatrician to have a look at it. Chloe's pimple changed form and then healed within a week. At 2 weeks old the site of the pimple/ sore was biopsied and on December 12th returned a diagnosis of Langerhans Cell Histiocytosis. At 7 weeks old Chloe went under anaesthetic for an MRI, double bone marrow biopsy and bloods, followed by an abdominal ultrasound and PET scan which cleared Chloe of any internal involvement. Chloe is on watch and wait and visits with her oncologist every 4-6 months.
We have just celebrated Chloe's first birthday and we couldn't be prouder, her health is still stable and she is thriving everyday.
I registered our family #TeamChloe as virtual walkers for the 2015 5K to fight Histio and had a poster of Chloe made for the event. I felt truly proud to see photos of Chloe's poster in NYC representing Australia. Our friends and family got behind us and helped us to raise $1220 our first year fundraising. Chloe's story and the link to her fundraising page were featured in two of our local papers which went global and her story was later featured in Australia's third highest selling magazine with over 1 million readers. Participating in the 5K really helped in getting awareness out to the public here in Australia and hopefully #TeamChloe can beat our 3rd fundraising effort in 2017.
What is the 5K to Fight Histio?
The 5K to Fight Histio takes place each year at Hudson River Park in New York City. It started with under 200 registrants in 2013 after Liam's Lighthouse Foundation and its supporters wanted to expand their outreach and awareness during the time they spent together in New York City. In previous years we reached almost 500 registrants prior to race day! This 5K helps families from around the world gather together for a cause they hold close to their hearts and raise much needed funds for Histiocytosis at leading researching hospitals in the US. Join us and REGISTER today!
What Histio Families Are Saying...
All I can say was that this weekend was absolutely incredible. I'll never forget the stories that were shared and the people that I met...thank you Liam's Lighthouse!!!!" - M.Rivera (NY)