Join us Monday, July 22, 2019 12-2pmPlease join us Monday afternoon after The Today Show for a Patient-Family & Physician Conference with presentation from our presenting sponsor, Sobi, an international rare disease company dedicated to providing access to innovative treatments that make a significant difference for people with rare diseases.
This conference gives Sobi an opportunity to educate and engage with the HLH community regarding Gamifant® (emapalumab-lzsg), the first and only FDA-approved treatment specifically developed for primary Hemophagocytic lymphohistiocytosis (HLH), and to be able to provide a first ever question and answer session to our HLH families and physicians! When planning your travel, be sure to extend your stay in NYC to include this special opportunity and be sure to check out all of our 5K to Fight Histio weekend events at www.5KtoFightHistio.org! We hope you will join us at The Today Show on Monday morning before this amazing afternoon to increase awareness of these horrible diseases! |
LocationNew York Marriott Marquis
1535 Broadway | New York, NY 10036 |