HLH Patient-Family & Physician Conference

Join us Monday, July 22, 2019 12-2pm

Please join us Monday afternoon after The Today Show for a Patient-Family & Physician Conference with presentation from our presenting sponsor, Sobi, an international rare disease company dedicated to providing access to innovative treatments that make a significant difference for people with rare diseases.

This conference gives Sobi an opportunity to educate and engage with the HLH community regarding Gamifant® (emapalumab-lzsg), the first and only FDA-approved treatment specifically developed for primary Hemophagocytic lymphohistiocytosis (HLH), and to be able to provide a first ever question and answer session to our HLH families and physicians!

When planning your travel, be sure to extend your stay in NYC to include this special opportunity and be sure to check out all of our 5K to Fight Histio weekend events at www.5KtoFightHistio.org! We hope you will join us at The Today Show on Monday morning before this amazing afternoon to increase awareness of these horrible diseases!

What is the 5K to Fight Histio?

The 5K to Fight Histio takes place each year at Hudson River Park in New York City. It started with under 200 registrants in 2013 after Liam's Lighthouse Foundation and its supporters wanted to expand their outreach and awareness during the time they spent together in New York City. In previous years we reached almost 500 registrants prior to race day! This 5K helps families from around the world gather together for a cause they hold close to their hearts and raise much needed funds for Histiocytosis at leading researching hospitals in the US. Join us and REGISTER today!

What Histio Families Are Saying...

All I can say was that this weekend was absolutely incredible. I'll never forget the stories that were shared and the people that I met...thank you Liam's Lighthouse!!!!" - M.Rivera (NY)

"I can't wait to be submerged in the heart of NYC for 4 days with my camera in tow to catch the excitement of this event and NYC itself (except for while I'm running haha)... I have a feeling this is going to be yet another life altering experience for me, one I'm truly looking forward to!!!" -J.Marie (NH)